Bite, helft uns Alicja Leben zu reten

handshake Other Charitable Project

calendar_month Launched on 12.04.2026

person_edit Created by Miroslaw Polasik

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FAQ

Sehr geehrte Damen und Herren

Meine zweijährige Nichte Alicja leidet an einem extrem seltenen und tödlichen Gendefekt namens INAD.

Diese grausame Krankheit raubt ihr nach und nach alle Körperfunktionen – von der Motorik bis hin zu den lebenswichtigen Funktionen.

Kinder mit dieser Diagnose haben eine durchschnittliche Lebenserwartung von etwa 10 Jahren

Weltweit sind rund 100 Kinder von dieser Krankheit betroffen.

Die USA-INADcure Foundation hat die Forschung an einer Gentherapie abgeschlossen, die diese Krankheit stoppen kann. Bei dieser Behandlung wird ein Vektor für das normale Gen verabreicht, das Alicja fehlt. Dies ist die einzige Hoffnung, ihr Leben zu retten.

Die Kosten dieser Therapie belaufen sich jedoch auf 1,5 Millionen ZŁ und übersteigen unsere finanziellen Möglichkeiten.

Wir bitten Sie inständig um Ihre Hilfe. Ohne Sie haben wir keine Chance …helfe Sie uns,fur die Behandlung unserer Alicja zu kämpfenii

Freundliche Grusse

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